ثبت بیماری کرون و کولیت در جمعیت ایرانی

ملک زاده, مسعود and سیما, علیرضا and اعلاتب, سودابه and صادقی, آناهیتا and دریانی, ناصر and ادیبی, پیمان and ملکی, ایرج and وثوقی نیا, حسن and فاخری, حافظ and یزدانبد, عباس and تقوی, سید علیرضا and آقازاده, رحیم and صومی, محمدحسین and زنده دل, کاظم and وحیدی, همایون and ملک زاده, رضا (1398) ثبت بیماری کرون و کولیت در جمعیت ایرانی. Intestinal Research ــ 17 (3). pp. 330-339. شاپا 1598-9100

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Iranian Registry of Crohn’s and Colitis: study profile of first nation-wide inflammatory bowel disease registry in Middle East

English Abstract

Background/Aims: A recent study revealed increasing incidence and prevalence of inflammatory bowel disease (IBD) in Iran. The Iranian Registry of Crohn’s and Colitis (IRCC) was designed recently to answer the needs. We reported the design, methods of data collection, and aims of IRCC in this paper. Methods: IRCC is a multicenter prospective registry, which is established with collaboration of more than 100 gastroenterologists from different provinces of Iran. Minimum data set for IRCC was defined according to an international consensus on standard set of outcomes for IBD. A pilot feasibility study was performed on 553 IBD patients with a web-based questionnaire. The reliability of questionnaire evaluated by Cronbach’s α. Results: All sections of questionnaire had Cronbach’s α of more than 0.6. In pilot study, 312 of participants (56.4%) were male and mean age was 38 years (standard deviation=12.8) and 378 patients (68.35%) had ulcerative colitis, 303 subjects (54,7%) had college education and 358 patients (64.74%) were of Fars ethnicity. We found that 68 (12.3%), 44 (7.9%), and 13 (2.3%) of participants were smokers, hookah and opium users, respectively. History of appendectomy was reported in 58 of patients (10.48%). The most common medication was 5-aminosalicylate (94.39%). Conclusions: To the best of our knowledge, IRCC is the first national IBD registry in the Middle East and could become a reliable infrastructure for national and international research on IBD. IRCC will improve the quality of care of IBD patients and provide national information for policy makers to better plan for controlling IBD in Iran. (Intest Res 2019;17:330-339)

Item Type:Article
زبان سند : انگلیسی
نویسنده اول :مسعود ملک زاده
نویسنده :علیرضا سیما
نویسنده :سودابه اعلاتب
نویسنده :آناهیتا صادقی
نویسنده :ناصر دریانی
نویسنده :پیمان ادیبی
نویسنده :ایرج ملکی
نویسنده :حسن وثوقی نیا
نویسنده :حافظ فاخری
نویسنده :عباس یزدانبد
نویسنده :سید علیرضا تقوی
نویسنده :رحیم آقازاده
نویسنده :محمدحسین صومی
نویسنده :کاظم زنده دل
نویسنده مسئول :همایون وحیدی
نویسنده :رضا ملک زاده
Additional Information:Indexed in: ESCI, Scopus, PubMed Central/PMC
کلیدواژه ها (انگلیسی):Inflammatory bowel disease; Registry; Iran
Subjects:WI Digestive System
Divisions:Faculty of Medicine > Department of Internal Medicine , Cardiology , Infectious
ID Code:12264
Deposited By: Dr Abbas Yazdanbod
Deposited On:13 Jul 1398 13:05
Last Modified:13 Jul 1398 13:05

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